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This landmark symposium, presented by The Golden Helix Foundation and the Pharmacogenomics Access & Reimbursement Coalition (PARC), was one-day interactive event made up of plenary keynotes from thought leaders across healthcare, focused on value-based strategies to improve patient access to personalized medicine. 

Stakeholders including patients, providers, industry, government agencies, payer organizations, health systems and health policy organizations will convene to define opportunities to improve patient access to personalized medicine through best practices, successful reimbursement models, high quality economic evaluations and strategic alignment.

 Topics was discussed at PARS 2020:

• Comparative Effectiveness Research for pharmacogenomics

• State-of-the-art value assessment frameworks for pharmacogenetics testing

• Pulling back the curtain on real-world evidence and pharmacogenomics

• New frontiers in cost containment

• Economic evaluations: ensuring quality trials and addressing challenges

• New methods and measures for improved economic evaluation and efficiency measures in pharmacogenomics to gain advances in increasing value and promote health-seeking behavior

• Identifying the most promising payer engagement strategies

• Strategies for producers and payers to collaborate throughout the product life cycle

 

View the embedded image gallery online at:
https://www.goldenhelix.org/news/latest-news#sigProId62ef12aba4

 

 

The Golden Helix Foundation wishes to appoint a provider for the purpose of booking a conference hall for the organization of the U-PGx Personalized Medicine Symposium, that will be held in Leiden, The Netherlands, on November from 5th to 6th, 2020. This Symposium will be co-organized by the Leiden University Medical Center and the Golden Helix Foundation, co-partners of the Ubiquitous Pharmacogenomics (U-PGx) (http://www.upgx.eu) project, funded by the European Commission (H2020-668353).

This international symposium is open for the general public, the patient organisations, regulators, insurers and for everybody interested in pharmacogenomics.

Selected company or person will be asked to provide the following services:

- Booking of a conference hall to accommodate 150 to 250 participants for two days (working hours),

- Provision of the necessary technical/IT equipment inside the conference hall (Projector, screen and pointer, laptop; PA system and microphones)

- Provision of technical support services of the efficient functioning of the technical/IT equipment during the symposium

- Arranging for the delivery of catering by a local provider (including 2 coffee breaks and a light lunch for all the participants for those 2 days event)

 

To express your interest, please contact the Golden Helix Foundation secretariat

(This email address is being protected from spambots. You need JavaScript enabled to view it.) with Subject “CEI – Leiden 2020”, including:

1. your offer,

2. a detailed description of the proposed activities,

3. a profile and track record of your company

 

 

Deadline: February 28th, 2020

 

 

 

  

The 3rd U-PGx Personalized Medicine Public Day was successfully co-organized in Patras, Greece by the Golden Helix Foundation together with the University of Patras, Department of Pharmacy, Laboratory of Pharmacogenomics and Individualized Therapy (Patras, Greece). The meeting was attended by more than 450 participants and coordinated by Ms Clelia Charissis, who moderated the afternoon and evening sessions.

The theme of the meeting was “Pharmacogenomics and Personalized Medicine”, was organized in Agora Argyri congress venue on September 26th, 2019 and was part of the dissemination and outreaching activities of the Ubiquitous Pharmacogenomics (U-PGx) project, funded by the European Commission (H2020-668353).

In particular, there were three main events, as part of the 3rd Personalized Medicine Public Day:

1. 09:00 – 14:00: Practical demonstration of the 2MoBiL Portable Molecular Biology Laboratory and its role in Personalized Medicine education for school students,

2. 17:00 – 20:00: Main event: Presentations and roundtable discussion of Personalized Medicine notions

3. 20:00 – 22:00: Bioscience night: Interactive discussions on Personalized Medicine topics.

This event was meant for the general public, patient organisations, regulators, insurers and policy makers. Registration was FREE-OF-CHARGE.

Please visit the following links for more photos, videos and details for this event (content in Greek)

• http://bit.ly/2m581c2

• https://youtu.be/NYhEEhgJQrM

• https://youtu.be/WaEQL98Wnos

• https://www.youtube.com/watch?v=R-iRbwjlEUg

• https://www.youtube.com/watch?v=WgvMmajlfZM

• https://www.youtube.com/watch?v=WgvMmajlfZM

• https://www.youtube.com/watch?v=PQbRMGwKioU

• https://www.youtube.com/watch?v=BSD7gpKvZFs

• https://www.youtube.com/watch?v=NYhEEhgJQrM

• https://flashstars.gr/me-megali-epitychia-pragmatopoiithike-i-3i-imerida-exatomikeymenis-iatrikis/

• https://www.patratv.gr/index.php/features/2016-02-15-11-01-13/87714-ημερίδα-εξατομικευμένης-ιατρικής

• https://www.envivlio.com/club341

• https://www.zougla.gr/ygeia/article/simantikes-parousiasis-stin-3i-imerida-eksatomikevmenis-iatrikis

• https://www.achaianews.gr/index.php/όλα-τα-νέα-h/κοινωνια/87714-ημερίδα-εξατομικευμένης-ιατρικής

 

 

We are seeking a marketing or professional congress organizing company or expert to provide services for the organization of the 2nd U-PGx Personalized Medicine Public Daythat will be held in Rome, Italy, on January 21st, 2019 at the Fleming Auditorium of the Università degli Studi di Roma “Tor Vergata”. This meeting will be co-organized by the Università degli Studi di Roma “Tor Vergata” and the Golden Helix Foundation, partner of the Ubiquitous Pharmacogenomics (U-PGx) project (http://www.upgx.eu), funded by the European Commission (H2020-668353).

This international event is open for the general public, the patient organisations,  the regulators,the insurers and for everybody interested in pharmacogenomics. For more information please visit http://www.goldenhelix.org/conferences/pharmacogenomics-days/upcomingconferences (/conferences/pharmacogenomics-days/upcoming-conferences).

Selected company or person will be asked to provide the following services:

- Arranging accommodation for guest speakers (6-8 rooms in up to 4* hotels),

- Arranging for the delivery of catering by a local provider (including 1 coffee break and a light lunch for all the participants (110-15 people) during the event),

- Website development and updating the web-based online registration system,

- Design of promotional material for the event (1st announcement (1000 copies), advertising banner)

- Advertisement of the event in various websites and public press with high attendance and accesible by wide audincies, mailing lists

- create a short list of proposed conferences where the event could be sponsored

- payment of the sponsorship in selected conferences,

- Social Media Consulting and Management,

- Content strategy development for social media channels and write/publish 3 posts each week or 12 per month,

- Design and production of printed material (including brochures, roll-up banners, participants’ name tags (110-150, depending on the number of registered participants),

- Provide notepads and pens for meeting participants (110-150, depending on the number of registered participants),

- Design and printing of the scientific program in a pre-determined format, (110-150 copies, depending on the number of registered participants),

- Printing of folders for participants (110-150, depending on the number of registered participants),

- Provision of communication and advertisement services of the event, including official announcement of the meeting, event campaigns, invitations - sent by e-mail to targeted recipients, advertisement plan (magazines, newspapers, radio and news websites) promoting the event to the local, regional and international network.

To express your interest, please contact: secretariat [AT] goldenhelix [DOT] org with Subject “CEI – Rome 2019”, including:

1. your offer,

2. a detailed description of the proposed activities,

3. a profile and track record of your company

It would be preferable canditates with experience of provision of marketing services on projects funded by Horizon framework..

 

Deadline: November 30th, 2018

We are seeking a marketing or professional congress organizing company or expert to provide services for the organization of the 6th U-PGx Personalized Medicine Day, that will be held in Stuttgart, Germany, on February 25th, 2019 at the same place where the 4th German Pharm-Tox Summit wil be organized. This meeting will be organized by the Golden Helix Foundation,  partner of the Ubiquitous Pharmacogenomics (U-PGx) (http://www.upgx.eu) project, funded by the European Commission (H2020-668353).

This international event is open for clinical pharmacologists, hospital pharmacists, general pharmacists, specialists, general practitioners, medical students, laboratory technicians, regulators, healthcare insurers and others interested in pharmacogenomics. For more information please visit http://www.goldenhelix.org/conferences/pharmacogenomics-days/upcomingconferences (Conferences / Pharmacogenomics days / Upcoming conferences).

Selected company or will be asked to provide the following services:

- Arranging accommodation for guest speakers (3-4 rooms in up to 4* hotels),

- Website development and updating the web-based online registration system,

- Design of promotional material for the event (1st announcement (500 copies), advertising banner)

- Advertisement of the event in websites, mailing lists, other conferences,

- Social Media Consulting and Management,

- Content strategy development for social media channels and write/publish 2 posts each week or 8 per month,

- Design and production of printed material (including brochures, roll-up banners, participants’ name tags (80-110, depending on the number of registered participants),

- Provide notepads and pens for meeting participants (80-110, depending on the number of registered participants),

- Design and printing of the scientific program in a pre-determined format, (80-110 copies, depending on the number of registered participants),

- Printing of folders for participants (80-110, depending on the number of registered participants),

- Provision of communication and advertisement services of the event, including official announcement of the meeting, event campaigns, invitations - sent by e-mail to targeted recipients, advertisement plan (magazines, newspapers, and news websites) promoting the event to the local, regional and international network.

To express your interest, please contact This email address is being protected from spambots. You need JavaScript enabled to view it.

(mailto:This email address is being protected from spambots. You need JavaScript enabled to view it.) with Subject “CEI – Germany 2019”, including:

1. Your offer,

2. A detailed description of the proposed activities,

3. A profile and track record of your company

DEADLINE for applications: November 30th, 2018

‘Rare Genomics : Genomics of Rare Diseases, Rare Cancers & Rare Drug Outcomes’


The 2018 Golden Helix Summer School was successfully organized on September 26-30, 2018 at Syros Island, Greece.


It is fair to conclude that the conference was a great success! Regardless of the very bad weather conditions, over 80 persons from more than 18 countries gave their time and resources to attend and/or lecture in the conference and turn this event into a smoothly running meeting with many very interesting presentations for discussion and networking.


All participants have enjoyed both the scientific as well as the social programme using the opportunity to share their ideas and expertise. We certainly believe that the conference has been all that it was expected to be and all of our attendees have taken the opportunity to make new friends and colleagues in their careers.


Special thanks should be given to those of you that although having registered to come to Syros they could not make it to the island due to the extremely bad weather conditions and the ferry service disruption.


Last but not least, we cordially thank the speakers of the conference who have delivered in the best way all the latest scientific research breakthroughs on Genomics of Rare Diseases from around the world.


Our participants’ presence helped to make this year’s Golden Helix Summer School a success and their enthusiasm and positive spirit helped make our time together both productive and fun.


You may see the photos of the event at https://bit.ly/2OPvaLY


Stay tuned for upcoming events by visiting http://www.goldenhelix.org/conferences